Resources

Alzheimer’s Association

For more information, please click on the button below.

Alzheimer’s Association

DS-Connect®: The Down Syndrome Registry

Please click on the button below for more information.

DS-Connect®: The Down Syndrome Registry

National Institute on Aging (NIA)

For more information, please click on the button below.

National Institute on Aging (NIA)

National Institute of Child Health and Human Development (NICHD)

Please click on the button below for more information.

National Institute of Child Health and Human Development (NICHD)

LuMind IDSC Foundation

The National Down Syndrome Society and LuMind IDSC are joining forces. For more information, please click on the button below.

LuMind IDSC Foundation

Global Down Syndrome Foundation

Please click on the button below for more information.

Global Down Syndrome Foundation

National Down Syndrome Society (NDSS)

Please click on the button below for more information.

National Down Syndrome Society (NDSS)

National Down Syndrome Congress (NDSC)

For more information, please click on the button below.

National Down Syndrome Congress (NDSC)

Down Syndrome Affiliates in Action (DSAIA)

Please click on the button below for more information.

Down Syndrome Affiliates in Action (DSAIA)

The Arc of New Jersey

For more information, please click on the button below.

The Arc of NJ

GiGi's Playhouse

Please click on the button below for more information.

GiGi’s Playhouse

Down Syndrome Association of Central New Jersey

For more information, please click on the button below.

Down Syndrome Association of Central New Jersey

New Jersey Family Support Group for those who have Down syndrome and Dementia

Eight years ago, two family members, Jane Boyle and Leone Murphy, started the New Jersey Family Support Group for those who were caring for individuals who had Down syndrome, were aging, and developing dementia. This caring and supportive group meets monthly on the last Tuesday of each month at 3pm via Zoom. Each month there is generally a professional speaker who is well versed in the issues of caring for a relative who has Down syndrome and dementia. Topics are addressed such as Guardianship, Diagnosis of Dementia, living arrangements, day programs and various medical and behavioral concerns. The group consists of many siblings and parents of individuals with Down syndrome.

After the speaker, there is time to check in with all of the participants and address their questions and concerns. It is a very strong and nurturing group so that caregivers do not have to face the aging process of those with Down syndrome and dementia alone. Please click on the button below for more information.

NJFOCUS